Isaac's World

Isaac is Deaf but hears with cochlear implants. He received his first cochlear implant on September 25th, 2006. He received his second cochlear implant on September 10, 2008. This is his journey with sound as told by mommy.

Friday, June 13, 2008

We love GBMC

We could not have asked for a more perfect day yesterday. Our trip to GBMC took only one hour and we didn't have to pay turnpike tolls either! Even Noah enjoyed the trip. We met with our audiologist and she was the nicest person. The CI program at GBMC is smaller than the one at CHOP, but this makes for much more personal attention. Our audiologist was genuinely interested in both Isaac and Noah. She got out a slew of toys and spread them on the carpet for Noah to play with while we talked about Isaac. The whole vibe at GBMC seemed friendlier to me than we are used to. Instead of only telling us what we need to improve on with Isaac's speech, we received lots of positive re-enforcement. We did a little bit of testing in the sound booth and we got wonderful responses from Isaac across the board. Isaac was so attentive that she was able to get responses from him at the 15-25 db range. I credit the audiologist for keeping Isaac's attention by playing games with him that encourage his full participation. She was so good with him. We selected the processors that we are interested in for his 2nd implant. We are choosing 2 beige for him because he already has 2 blue. She let us know that they could re-program his other blue processor so he could wear it on his newly implanted ear. After we left the audiologist, we were on to meet our surgeon. We had another smooth meeting (well as smooth as could possibly be for keeping a 3 year old and a 1 year old entertained in the waiting rooms). After looking at Isaac's CAT scan from 2 years ago, the Dr. said that Isaac's left ear would actually be the easier of the two to implant. He was excited about that. He was shocked as well with CHOP's recent suspension of the bi-lateral program. He is very excited to operate on Isaac and we are waiting for the surgical scheduler to call us with a surgery date. He said it would be one to two months from now. The only concern I have is that for 2 days, Isaac has to wear a bandage on his head and it could be difficult to put his existing processor on his head. Does anyone have any experience with this? It would be difficult if he couldn't hear anything for 2 days until he can take his bandage off. We are very excited about GBMC. It is a true answer to prayer.

5 Comments:

Anonymous Anonymous said...

SHILO THIS GREAT I AM SO HAPPY TO HEAR THAT THE SURGEON DOESN'T EXPECT ANY PROBLEMS. I THINK NOW WOULD BE A GOOD TIME FOR ME TO THANK GOD FOR HIS TIMING. THIS HAS REALLY BEEN A GOOD LESSON ON WHY GOD TELLS US TO HAVE UNWAVERING FAITH. EVEN THE FAITH THE SIZE OF A MUSTARD SEED IF UNWAVERING WILL BRING RESULTS. DEE

4:53 PM  
Blogger Mom to Toes said...

Shiloh, I am so thrilled to hear how well it went! It sounds like an incredible CI Center. I am so glad you fought to get him seen by GBMC.

Erin's right coil stuck to the outside of her bandages just fine and she heard without any problems. You can always tighten the magnet on the coil to get a closer connection and then back it back off once the bandages come off.

I am so excited for Isaac! WTG, Mom! :D

4:56 PM  
Anonymous Anonymous said...

"SHILOH", I AM SO SORRY FOR MISSPELLING YOUR NAME. I MUST HAVE MOTHER- IN-LAW SYNDROME. EVELYN MISSPELLED MY NAME FOR 23 YEARS. I ALWAYS KNEW THAT SHE LOVED ME ANYWAY. PLEASE FORGIVE ME. DEE

1:54 PM  
Blogger Hetha said...

This was all meant to be, it's as simple as that. You guys all deserve this and I'm so happy for you!

I second what Wendy said, we had no problems with Ethan's earpiece and the bandage. It will all work out fine.

xoxo

1:07 AM  
Blogger Shiloh said...

Thanks for the advice with the bandages Wendy and Heatha. I will let you know how it works.

1:37 PM  

Post a Comment

Subscribe to Post Comments [Atom]

<< Home